Inclusion Isn’t About Being the Same
“Same.” That’s what the two-year-old proudly proclaims when she wanders, cloppity clop, into the kitchen wearing her mother’s good heels and expensive jewelry. It’s also what the teenager is attempting to achieve when shopping for a new outfit or schoolbag, and what the business executive might have in mind when he orders the new luxury SUV that some of his colleagues were talking about in the office lounge. We have “made it,” it seems, when we are just like everyone else. It is that innate drive to achieve sameness that all too often diverts limited resources away from helping individuals to maximize their potential while still taking note of and honoring their differences.
This drive for sameness underlies so much in life: applied behavioral analysis, corrective surgeries, even a handicap in a round of golf — it’s all about leveling the playing field. The problem, however, with chasing the unattainable, is that it is a recipe for burnout, disappointment, and existential crises.
In the world of learning disabilities, neurodivergence, genetic conditions, and a host of other differences, there is a disproportionate focus on being the “same.” While I can’t seem to put my finger on the “why,” there has certainly been an uptick, of late, of children and teens with very pronounced differences being shoe-horned into more mainstream learning environments. This happens despite the oft-mentioned idea in the world of education that we can’t “force a round peg into a square hole.” That thinking, however, is generally limited to children who exhibit mild or less overt differences. Kids who need a little something extra: extra time on a test, extra attention from the teacher or paraprofessional staff, extra recess, or extra incentives. “Don’t let their differences be the cause of their slipping between the cracks of institutionalized education and development,” goes the rationale: acknowledge their unique needs and address those needs.
But somehow, when the needs are indeed significant and overt; when the differences put their host in danger of being “othered,” then we do the opposite: we try to make them fit in, almost at all costs. Tremendous resources are invested in this group. Many of those resources are government sponsored, while others come from parents in the form of tuition or private therapies. Another significant source is philanthropic dollars. In addition to funding for these efforts, volunteerism plays a meaningful role in making “others” be “the same.”
This approach does not and cannot work. As Australian disability advocate Stella Young quipped in her viral TED talk, “No amount of smiling at a flight of stairs has ever made it turn into a ramp.” The reality is that many students with learning or developmental differences are provided significant supports and adaptations to allow them to function within parameters specifically designed for people who are not like them. Eventually and necessarily, many of those supports disappear leaving so many of these individuals lost and frustrated, as they are unprepared to engage properly and independently with a world that runs counter to their unique experience.
To be sure, there are many ways in which certain kinds of support can, should, and are appropriately maintained in what we might call the real world, but these tend to be in the form of physical accessibility. A business is mandated to provide wheelchair access, for example, and options for the hearing and visually impaired are very commonplace. But to rewire a business or society for those who experience and process it differently is virtually impossible.
Fear not: it really doesn’t have to be this way. If we engage all individuals from a place of acceptance and understanding, we can normalize not being “normal.” After all, isn’t that how teams work? The running back doesn’t have to be a lineman and there will only be one quarterback. And that’s fine. Sure, it can be uncomfortable to be different, but at the same time…does it really have to be?
A student of mine, a fellow by the name of Meir, was once asked by a group of high school girls what it is like for him to have Down Syndrome. Without missing a beat, Meir replied: “Some people are tall and some people are short, some people are fat and some people are skinny, and I have Down Syndrome.” As simple as that. Differences are just…different.
February is designated as JDAIM — Jewish Disability Awareness and Inclusion Month — specifically because February, with its 28 days (and sometimes 29), is the month that is not like the others. And that’s just fine for February. We need to realize that acceptance and inclusion doesn’t refer to fixing the “problem” or ignoring the difference. Telling or even silently suggesting to a fish that it is safe on land, would not bode well for the fish. As a matter of fact, that very thought is a fairy tale — one we know as Disney’s “The Little Mermaid.”
Rather, we all need to look differences right in the eye and welcome their uniqueness into our mostly mainstream world. We need to encourage those who are different to embrace their struggles and differences, and we need to be ready to do the same — with open arms and open minds.
Avi Ganz is the program director of the Elaine and Norm Brodsky Yeshivat Darkaynu, a division of Ohr Torah Stone, which offers a unique year-in-Israel program for young adults with special needs.